Why is it so difficult?

So difficult to get someone to listen? For 14 weeks I have been backwards and forward to the doctors I can’t even tell you how many times! Fraser is 16 weeks old today!

At 2 weeks old we went initially… must be reflux, try Gaviscon. Worked for 3 days then the copious amounts of vomit appeared again. Went back… could be an intolerance…. try this Cows Milk Free formula…. didn’t make a difference. Go back again…. try gaviscon… worked for 3 days and caused major constipation. In all this time too along side the vomiting after almost every feed, Fraser was screaming for hours on end most afternoons/ evenings. So distressing for everyone. Nothing I do comforts him.

Go back again to an out of hours appointment at the hospital. Doctor wasn’t listening, he was referring to Fraser as a SHE and asked me about 4 times if Gaviscon was working. If Gaviscon was working I wouldn’t be sat there! Idiot! He gave me a prescription for Ranitidine, didn’t explain properly how to use it and told me the hospital pharmacy would explain when they dispense it. Took it to the hospital pharmacy and they told me they couldn’t dispense it as it was a green prescription and not a white one. By this point I was more than a little bit cross and was pulling my hair out.

 

Spoke to a GP at my surgery again on the phone a few days after that who was fairly helpful, wrote a new prescription for Ranitidine and explained how to use it. So I picked up the prescription took it to my chemist and they dispensed it but told me that they didn’t have any 1ml syringes which I would need to administer the meds to Fraser! He told me I will have to go round other chemists to see if they had any and he didn’t know when they were getting anymore in stock! Luckily my Mum got one from her local pharmacy! Bloody useless!

 

Ranitidine wasn’t making an ounce of difference. A couple of conversations with friends on Facebook and they mentioned Tongue Tie…. hmmmm my other 2 didn’t have this, I didn’t know what to look for…surely a professional would have picked this up!? I took a picture of under his top lip and it was impossible to get an under the tongue one so videoed 10 seconds in his mouth when he was crying. One of my friends said she had diagnosed plenty of lip and tongue tie in her career and was very sure Fraser had both! A few others who saw commented saying that their babies had this and Frasers looked very similar.

So we booked in to see another GP at my surgery. I explained everything AGAIN from the beginning, about all the meds not working, about the possibility of Lip and Tongue Tie and she looked under his tongue and said oh it can’t be that, he has good tongue movement. Then went to take her gloves off, I said “can you look at his lip too please” She looked and just said hmmm I don’t know. I just burst into tears at this point. So bloody frustrated. I said about feeling like no-one is taking me seriously and I feel like I keep being fobbed off with meds, different milks, Ive tried comfort milk too and that made no difference. I think she was a bit taken aback by my tears. She felt his tummy. She said all seems ok but will refer us to the paediatricians as something can’t be right with all the vomiting and screaming. So she has referred for “Tummy Issues” … nothing to do with lip or tongue tie!!

 

Now we have also noticed that Fraser is losing weight. This is worrying. So I took him to see the Health Visitor as I had done the last couple of weigh ins at home. On the 19th June he was last weighed “properly” and he weighed 16lb 6oz. and then yesterday on 17th August he weighed 17b 1oz. I had weighed him in at 18lb in between that time but how accurate my scales are I don’t know. But regardless of my recordings, 11oz gain in 2 months is not right. Babies should be gaining 1-2 lbs a month.Fraser hasn’t gained 1lb in 2 months. Health visitor advised to come back next week to weigh in again on her scales and we will see from there. She also checked his tongue and lip and is sending us for an assessment for that. FINALLY!! Thank you!! How bloody hard was that?

 

So I will keep you posted on any updates but I have such a headache from it all, I am so stressed out. Things can only get better right?

 

 

3 thoughts on “Why is it so difficult?

  1. Aww you poor loves. I swear someone has started messing with baby formulas etc because we never had these issues when my first born arrived. Nowadays you have to jump through hoops, try all kinds of different things to find a solution for our children’s discomfort. It’s madness.

  2. Oh how stressful and frustrating, for you. It’s so hard when you feel you aren’t being taken seriously but you know something isn’t right!! I hope you get things sorted soon. We had reflux and a tongue tie. We didn’t get the tie clipped in the end, but it wasn’t a severe one.

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